Emory University and Antiracism Research for Health Equity at the University of Minnesota are particularly interested in engaging Black and Indigenous (American Indian/Alaska Native) patients (ages 15-25) and parents who have experienced palliative care, as well as those who have not. Additionally, bereaved parents who are a year or more into their bereavement are also eligible to participate. A pediatric serious illness may be defined as any condition that at some point was or may be life-limiting or life-threatening (i.e., cancer, Sickle Cell Disease, traumatic brain injury, metabolic/genetic syndromes, complex heart disease, complex NICU or PICU admission, etc.).

The interviews will be conducted into the Spring, and each session is estimated to take 1 hour. Participants will receive a $50 gift card as a token of our appreciation for their valuable contributions. If you have any questions or require additional information, please feel free to reach out to me or Khaliah directly at khaliah.johnson@choa.org.

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